“Coming together is a beginning. Keeping together is progress. Working together is success.” – Henry Ford (Industrialist, engineer, businessman, leader, and founder for Ford Motor Company; 1863-1947)
Come together virtually at NIH event and listen to scientists, physicians, patients, congressmen, and advocacy groups who are working hard to find cures and/or improve healthcare for rare disease patients.
Key Areas: Rare Diseases I Science I Medicine I Advocacy
Series: Advocacy – News & Analysis
Source: National Institutes of Health (NIH) Building 1, Bethesda, Maryland. Photo taken by Qualiten Press Team, 2017.
On March 01, 2021, National Institutes of Health (NIH) is conducting Annual Rare Disease Day event from 10:30AM to 5:30PM EST. This event is virtual (online), free, and open for the public. Check agenda, speakers’ biography, and registration information at: NIH Rare Disease Day Event
For many years NIH has been organizing annual Rare Disease Day to educate public, patients, researchers, and policy makers about rare disease research and discovery conducted and supported by NIH . Qualiten Press and Rare Is Special team has participated in Rare Disease Day event at NIH in year 2017; and we will be attending it this time too, but virtually.
This year’s speakers include Senator Roger F. Wicker, Congressman G. K. Butterfield, Congressman Gus M. Bilirakis, NIH Director Dr. Francis S. Collins, NCATS Director Dr. Christopher P. Austin, Nobel Laureate Dr. Jennifer A. Doudna, Dr. Laura M. Koehly and Dr. Anne R. Pariser among many other researchers, patients, family members and rare disease advocates. It is a golden opportunity to listen, learn, discuss, and create awareness on rare diseases.
Source: Masonite tiles decorated by National Institutes of Health Clinical Center patients as part of project “The Art of Healing: The patient tile project.” Photo taken by Qualiten Press Team during visit to NIH, 2017.
Learn more about rare diseases: National Institutes of Health (NIH), Rare Diseases Clinical Research Network (RDCRN), National Organization for Rare Disorders (NORD)
Please note that Qualiten Press or author(s) are not affiliated or have any association with National Institutes of Health (NIH). This news article is written to create awareness and share information about this event with public. Qualiten Press believes that public participation and community engagement can expedite the research and discovery in underserved areas such as rare diseases.
“Efficient interactions between patients, families, researchers, pharma, regulatory agencies and policy makers are critical for the timely development of rare diseases diagnostic tools, devices, and drugs.”
– Qualiten Press
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