Qualiten Insight

Qualiten Insight publishes latest news, analysis, announcements, interviews, quizzes, multimedia and other science and medicine reports from worldwide contributors (including Qualiten staff). To contribute articles and stay updated please subscribe for updates.


Visual retreat with science related multimedia

Inspiring words – Rare Disease Day, NIH

“Developing lexicons and glossaries to colloquialize science is important, but one thing that’s really important is to tear down paywalls.” – Luke Rosen (Actor, Patient advocate, Founder – KIF1A.org)

Qualiten Press team has compiled inspiring quotes from Annual Rare Disease Day event conducted by National Institutes of Health (NIH) to raise awareness and provide information about rare diseases. Check more in the video below!

Key Areas: Rare Diseases I Science I Medicine I Advocacy

Series: Advocacy – Multimedia




On March 01, 2021, National Institutes of Health (NIH) conducted Annual Rare Disease Day event which was virtual (online), free, and open for the public [1]. The event consisted of patients’ stories, scientific discussions, and various other informative sessions. It raised awareness and provided insights on current unmet needs, challenges, and potential solutions to improve research and discovery in rare diseases [2].

This year’s speakers included Senator Roger F. WickerCongressman G. K. ButterfieldCongressman Gus M. Bilirakis, NIH Director Dr. Francis S. Collins, NCATS Director Dr. Christopher P. Austin, Nobel Laureate Dr. Jennifer A. Doudna, and Dr. Anne R. Pariser among many other researchers, patients, family members and rare disease advocates.

Previously, in year 2017, Qualiten Press and Rare Is Special team has participated in Rare Disease Day event at NIH; and this year we attended the event virtually. Qualiten Press has created this video containing inspiring quotes from the event, which we hope would help people in raising awareness and understanding current needs in rare diseases area.

We would like to thank Senator Roger F. Wicker, Dr. Christopher P. Austin, Dr. Anne R. Pariser, Dr. Jennifer A. Doudna, Dr. Tracy Dixon-Salazar, Dr. Christopher U. Missling, Ms. Shazia Ahmad and Mr. Luke Rosen for their service and constant support to rare disease community.



Video recording of the Rare Disease Day – 2021 Event, NIH: https://videocast.nih.gov/watch=41259

Rare diseases community resources, NIH: https://ncats.nih.gov/engagement/rare-diseases-community-resources


“We have limited time, but we have high hopes – from scientists, physicians, policymakers, caregivers, families, advocacy groups, and you. Share, talk and educate – TODAY!”

– Qualiten Press


Copyright: Copyright © 2021 Qualiten Press; Storyline and visuals from Qualiten Press. Audio licensed from third-party.

License and Use: This video is Open Access and under Creative Commons Attribution 4.0 International (CC BY 4.0) license. CC BY 4.0 license allows the sharing and use of content if attribution terms of CC BY 4.0 license are followed, such as providing proper citation to author(s) and publisher. Qualiten Press may have used licensed or permitted products (such as third-party audio and visuals) in creation of this content. Qualiten Press takes no responsibility, nor can be held liable, for any misuse of third-party audio or visuals (extracted from this content) by someone.


Cite this Content: Hussain A, Maurya P, Kumar A. Inspiring words - Rare Disease Day, NIH. Qualiten Insight. 2021; ID:09007000007


Qualiten Press Team

Discoveries from Basic to Beyond

United States

Key Areas of Expertise:

Open Access Publishing
Scholarly Communication
Research & Development
Patient Advocacy

Profile Summary
    Qualiten Press serves science and healthcare by publishing peer-reviewed scholarly journals, increasing accessibility, creating easy-to-understand scientific content, continuing innovation, patient advocacy, and promoting collaboration.

    Our platforms include Qualiten Journals, Qualiten Insight, Qualiten Care, Rare Is Special

We accept guest contributions. Interested in contributing your content at Qualiten Insight:
Check Qualiten Insight Submission Guidelines

Want to be notified of new posts and offers by email:
Subscribe for Updates & Offers

"Public is the funder, creator and user of research; hence public should get unrestricted access to published research outcomes."

 - Qualiten Press

Get In Touch

Need support or have a question? Live Chat, Call, Text, Fax, Journal Specific E-mail or submit contact form below:

Live Chat

Click to Chat


Toll Free Call (+1-844-QUALI10)


Text & Call


Fax (+1-833-QUALI10)

9:00AM - 5:00PM PST

Hours (Mon-Fri)

2888 Loker Avenue East, Carlsbad, CA 92010, United States of America


Read & Publish with confidence,
you are Secure With Us